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mch (Marycarol) (@mch)

Arikayce Approval

MAC & Bronchiectasis | Last Active: 1 day ago | Replies (36)

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@tconz

I use Amakacin 3 time weekly. I have not had any issues other than a dry throat.

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Replies to "I use Amakacin 3 time weekly. I have not had any issues other than a dry..."

@tconz, thank you for your reply. I am worried that I may experience some some hemoptysis because it is listed as a possible side effect. I have experienced it before. Do you notice any change in your hearing or kidney function when using it only 3 times per week? I am on Azithromycin and Ethambutol 3 times per week also. I wonder if patients who add the Arikayce daily experience culture negativity sooner than those who use it only three times per week. Using the other two drugs for 4 months brought me to sputum negative and only a few colonies on culture. I still don’t have results from months 5 and 6, and I am wondering if I should use the Arikayce daily. I will be having someone from the Arikayce company come out next week to train me on usage. My doctor is excited that soon Arikayce will be allowed to be used as part of the initial treatment, instead of having to wait. It is so hard to wait for new treatments to finish all of their trials before full approval for wide use. From what I am reading, patients who add the Arikayce have very good results. I hope that everyone soon can have the opportunity.