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@lyons1234

Hello,
I just finished my third round of Lutathera treatment. Each treatment takes 5-6 hrs, no pain or radical side effects. Most of the time is for Amino Acid infusion to protect Liver and Kidneys before and after Lutathera.
I can't measure the effectiveness of the treatment until I have a scan done after the 4th and last infusion.
I still have carcinoid symptoms, but they seemed to have diminished. Studys done with Lutathera indicate
a very positive success rate. Some as high as 70% in stopping tumer growth or reducing size. You'll have to do the research. I have several metastatic carcinoid tumers abdominal and liver involvement. If this doesn't work
I'll probably go back on Everolimus.
Good Luck
Thanks
John

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Replies to "Hello, I just finished my third round of Lutathera treatment. Each treatment takes 5-6 hrs, no..."

Lyons1234
I just read your post I see you were on Everolimus
I am to starting next week
My NET of unknown primary is spreading it is in a liver lymph node and now my spine
Please I have done my reading on side effects and success rates
I need to find someone who has been on the medication and see what they did to help with the side effects and of course to hear there story of how the drug worked
Thank you