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Is anyone here on, or been on, mycophenolate for PN?

Neuropathy | Last Active: Nov 21, 2021 | Replies (7)
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John I have been on cellcept for over 5 years. I have dermatomyositis with ILD for over 13 years! This drug has kept my disease under control. I was taking 2000 mg per day but I was in so much pain doctor reduced it to 1500 mg see if that helps. My insurance pays for it.

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Replies to "John I have been on cellcept for over 5 years. I have dermatomyositis with ILD for..."
JohnWBurns | @johnwburns | Apr 15, 2016

Well that's reassuring, thanks. I'm on 1000 mg but have no idea whether he'll raise it. Supposedly it takes at least 6 mos to work so patience is required. The way things have been in the last few years, if there is a side effect I'll get it so I'm hoping for some luck. Wish some for you as well.

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