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Anyone had Proton Beam Therapy for Meningioma?

Brain Tumor | Last Active: Mar 25 10:49pm | Replies (47)

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@jgboyle

Hello,

I had proton beam radiation therapy to minimize my meningioma. It was provided to me this February through early March 2023. 15 treatments were the total they provided for me.

Mine was the size of my hand and it had its third regrowth in 4 1/2 years. I have a stage 1 with a fourth grade, a high proliferation index. It was shared this did become “brain cancer” with its third regrowth.

So far, it has been working well with some modifications to this treatment. I’ve had to stay on steroids for now and Avastin (it kills the blood supply to the tumor) for a chemotherapy infusion. My meningioma did shrink in size though! Even with having to take several trips to the local ER with nausea and vomiting this summer. I can say it’s worked out for me so far. Especially with the steroids and Avastin treatments.

I hope as you move forward, this could be a successful outcome for you. Let me know if you have any questions.

Take care,
Jenny

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Replies to "Hello, I had proton beam radiation therapy to minimize my meningioma. It was provided to me..."

Thank you so much for your input, Jenny. I am waiting to hear if I'm a candidate for proton therapy. In the meantime, I've had a second emergency surgery to deal with an infection that developed on the outer area of my skull from my Aug 1 craniotomy. Waiting to see what MRI and surgeon explains about new findings.