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Implantable neurostimulator for chronic pain

Spine Health | Last Active: Jun 21, 2023 | Replies (334)

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@wisco50

Chronic pain is emotionally and physically exhausting. It affects everything you do, IF you can do whatever it is that you want to do. It’s just miserable and I think unless someone has been there, they just don’t understand. I can honestly say that even working in a hospital as an RN, surrounded by people of all healthcare professionals, I often felt alone and definitely misunderstood. I especially think when the person’s pain is caused by something unable to be seen by others - pain in neck, back, chronic headaches, jaw pain, etc. - then it is less likely to be believed as (even) existing, or not being “as bad” as the person says or acts, and if said chronic pain causes significant emotional distress/depression then that just adds to the burden. These days my pain is tolerable (neck and back) and with ESTylenol/NSAIDS and a SCS for my back/leg, I’m doing ok. But my other major chronic pain episode (my first experience with it) began in fall 2000 and culminated 11 years after multiple doctors/dentists/oral maxillofacial surgeons and multiple procedures including both minor and major surgeries, ending with having bilateral jaw joint replacements. Recovery was a good 6 months re swelling etc. I had profound depression through most of those years. I had been written off as a “crazy/uncooperative patient” by several of the people I sought help from. I ended up being traumatized by one so called specialist - I still have flashbacks to her screaming at me in office. Ended up being diagnosed with PTSD. (No comparison to what military deal with, please understand, just saying it was explained what was causing my symptoms.) Anyway, sorry for rambling. Been having a rough time right now with more flashbacks - thinking part of it is this social isolation and it is 11th anniversary of my surgery (about 8-9 hours) coming up. The great news is it worked! My jaw pain is no more, I can eat, smile, talk, yawn, hallelujah! I just need to shake the bad stuff back and not think about it. Thanks for listening.

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Replies to "Chronic pain is emotionally and physically exhausting. It affects everything you do, IF you can do..."

@wisco50 I want to welcome you to connect where we cant diagnose but are a caring bunch of people who try to help . I,m so sorry for your isolation you have . I would like to ask @merpreb to talk with you here as she has PTSD also and is a cancer lung survivor .

@wisco50- Hello, it's nice to meet you. I'd like to invite you to join the PTSD discussion where people who have PTSD share their stories and support. My PTSD is a lot of anxiety and some fear. It really showed up as a result of my second lung cancer back in 2007. There are 5 different types of PTSD. One is not more or less severe, to me, because it depends on the person. Certainly, someone back from war has horrible memories, but as you mentioned you can't stop seeing a doctor's response to you. So whose is worse? ink of
When we are experiencing memories that are painful we are remembering a time in the past. Years have gone by since then so even the memory has changed somewhat. Also, we are not at that moment, we are in the now remembering it so only our minds can feel how awful it was. It can't hurt us now. We aren't in the war zone or in the doctor's office. You can shut the door if you want.

Perhaps @gingerw can talk about her experience with PTSD.

I feel so much for what you must be experiencing. I hope that you have sought therapy.
https://psychcentral.com/lib/types-of-ptsd/
https://connect.mayoclinic.org/discussion/anyone-else-with-ptsd/?pg=39#comment-401759
https://www.mayoclinic.org/diseases-conditions/post-traumatic-stress-disorder/symptoms-causes/syc-20355967
Have you been to therapy?