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@annewoodmayo

Hi Alette3939,

wow! None of my docs will prescribe Paxlovid for me, now that I don't have Covid. I am thrilled for you!

How did you contact the NIH?

Thanks very much for responding. When Paxlovid made me feel better, I thought maybe I was crazy -- since that's how doctors made me feel for years about my autoimmune disease. It's good to know that others have had a similar result for a similar problem.

I started this thread in hopes of getting an idea of how many people have been helped by Paxlovid for auto immune diseases. Now that I know that there are other people, I don't know what to do with the information.

Another person who responded suggested that we contact the manufacturer, which I did. I emailed Pfizer. There is a contact email address on their website.

Thank you!

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Replies to "Hi Alette3939, wow! None of my docs will prescribe Paxlovid for me, now that I don't..."

I emailed Pfizer too! Great work. The more of us the better. Do a search for online doctors who will prescribe medication for COVID — that’s how I get it. Plus my OB gets it for me. I have a new rheumatologist who I think will prescribe it too. I’m not someone who takes medication lightly. I take ibuprofen maybe 3 times a year. But Paxlovid has been so life changing for me that I make sure I have it on hand when a flare comes upon me. I have yet to be officially diagnosed with a specific disorder. I get very ill if I accidentally ingest gluten but I’m not celiac. I have every Graves symptom but my thyroid is normal. I’ve been debilitatingly sick on & off for 15 years. I’ve always suspected it was autoimmune but no one could find anything “wrong” with me. I finally found a great doctor about a month ago & I’m undergoing extensive testing. As far as I’m concerned, I’d be happy taking Paxlovid forever. Right now I take about 2 days worth every couple of months and that seems to be working to keep my symptoms under control. This is entirely my own protocol. No doctor has recommended this. But it works for me. I should also say that I have no kidney or liver disease. Paxlovid is dangerous if you have kidney or liver issues. I researched ritonavir (in Paxlovid) and found that after HIV patients had been on daily ritonavir for about 7 years they experienced vision loss, so ritonavir is only a “booster” with antivirals now in much lower doses. For this reason, I believe it’s very safe at the levels I’m taking it. I’m so glad you emailed Pfizer. I begged them for a study. I also emailed multiple directors at NIH using their contact info on their website. I got a response back saying my experience is “intriguing” and they are “passing it around”. They told me there is a study at Stanford but when I contacted them I was told it was more of a long haul study. However, NIH did tell me they are looking into Paxlovid for autoimmune disease. I hope it doesn’t take years.