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PMR: Are there treatment alternatives to Prednisone?
Polymyalgia Rheumatica (PMR) | Last Active: Jan 11 7:08am | Replies (175)Comment receiving replies
A year or more ago -- PMR victim here - Over a year ago I was coming off slowly to find the lowest dosage of Prednisone - I am now going on my 3 rheumatologist - the first 2 moved on after about a year / +. I get a letter that another one left on 9/21. I am down to 2 mg's of Prednisone a day and 6 Methotrexate every Monday. For over a year, my thighs are in so much pain -- not the hips -- the thighs. I have little strength and depending on what I do the day before will dictate the next day movement. Is there something other than Prednisone ?? I'm also thinking about traveling to another rheumatologist -- Alive and dragging both legs -- sincerely West Virginia
Replies to "A year or more ago -- PMR victim here - Over a year ago I was..."
When PMR first hit me, both my hamstrings frayed/tore. In some literature thighs were "marked" as possible spots. Hang in there. I also use CBD & Delta 9 gummies (over the counter), and it helps me with the pain.
Hi @wv54, I moved your discussion and combined it with an existing discussion titled: "PMR: Are there treatment alternatives to Prednisone?" - https://connect.mayoclinic.org/discussion/alternatives-to-prednisone/
I did this so you, @bradninchgirl and @edinnola could see what other members have posted about in the past in regards to alternatives and struggles with prednisone.
@wv54, you mentioned that what you do in the course of a day dictates how your next day will go. How much are you limiting yourself because of this phenomena and have you discussed your limitations and frustrations with your provider? Is this a reason you are thinking about seeking a new one?
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Now into my 4th year with PMR and now on 1mg. I get pain in my outside thigh muscles and weakness but I hadn't associated it with Prednisone. having just decreased my Prednisone level it doesn't seem to have made any change to this. It seems to get a little better if I force myself to eat green leafy vegetables, which I hate. I top them generously with grated cheese to take away the taste, but it's worth it as it really did seem to make a difference. At 80 I find my appetite is decreasing and it makes getting adequate nutrition difficult, especially as all my favorite foods are on the "do not eat" list..