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New Here and need to learn fast

Lung Cancer | Last Active: Oct 31, 2023 | Replies (69)

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@lls8000

@sayitisntso, I wish it would have been better news. What you are feeling is normal, numbness for now. Expect to be overwhelmed with information and a language that you don't understand. You'll learn, and we can try to help you. I'm glad that your daughters are there/coming to support you, and each other.
Your doctors are taking the expected next steps in ordering the brain MRI and the biopsy. Today, there are many types of treatments for lung cancer. The biopsy will provide vital information in directing the treatment plan. My oncologist waited for the NGS/bio-marker tests to come back before doing any treatment. I was getting sicker and sicker but looking back I'm glad we waited. With your accelerated spread, I'm surprised that you aren't experiencing symptoms too. I hope that continues for you.
There are many stage IV patients living longer active lives. Until we know more about the specific type of cancer, it's difficult to predict what you'll face. That biopsy is critical. There are many different types of lung cancer, and just as many or more treatment options.
I was diagnosed stage IV 3 1/2 years ago, and just hiked Rocky Mountain National Park last month. I have no plans to slow down anytime soon.
Spend time with your daughters, don't worry about responding to Connect right away. How are you feeling after the biopsy? Does one of your daughters live nearby?

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Replies to "@sayitisntso, I wish it would have been better news. What you are feeling is normal, numbness..."

Hearing this gives me hope! May I ask what treatments you received. I, too, am Stage IV.

Lisa gives great insight and advice. I will only add that facts and plans will be coming at you right and left. Don’t hesitate to ask them to repeat themselves and keep a journal in your purse so you can make notes. And please consider what your method is to take 20 minutes and tune everything out. It really helps with sanity and energy.
All my best wishes for you…