On a personal note - last baseline test was completed yesterday, and I started my targeted chemo an hour ago. Followup testing in about a month.

For anyone who hasn't read through the thread: I am opting for a nonstandard approach. It wasn't easy, and has limited evidence to support it. The evidence which exists is really good, and it's using FDA approved drugs (approved for other tumors with the same mutation) - so for me the risk is worth it.

My approach will not be the right approach for most people. I hope it works out and helps pave the way to becoming an accepted option sometime in the future.