Hello @newnet and welcome to the NETs support group on Mayo Connect. I'm glad that you found this forum. I joined several years ago when I was diagnosed with my third NET of the upper digestive tract and I've found support and encouragement here. Since NETs are a rare form of cancer, it helps to find others who are on the same journey of living with this rather unusual disorder. Many of us never had symptoms, but the NETs were found incidentally during a scan or procedure that was unrelated to the NET.

I see from your post that you have recently had a GA68-Dotatate Scan. As you are comfortable doing so, would you share a bit about your diagnosis of NETs? For example, were there symptoms that led to the diagnosis, how long ago were you diagnosed. Have you had any surgery or other treatments?

I look forward to getting to know you!

Awesome! Who is your doctor? And what type of NET do you have?

I have been dealing with Scans, injections, surgery for the last 11 months. If I can be of any help, please, reach out! Good luck!💜