@pfbacon Hi Peggy. Oh my! When and what did I start with? Before peripheral neuropathy hit, I only took Ibuprofen for some arthritis. After having a ladder dump me from 12', I took Percocet for a while. I had two compression fractures in my lower back, and I think I broke something in my arm. Percocet was just a short term medication, but I would take one at bedtime if my back was hurting from doing too much. I rarely take any - maybe once in a month.
Then came neuropathy. My PCP had me try the standard meds for it, but nothing helped. Some didn't do anything and the others had side effects. At some point I started taking morphine sulfate contin, and was up to 30mg 3x a day. While I was taking morphine, I tried Cymbalta, which seemed to help a little. I decided to taper off the morphine to see if it was helping. After getting off it, I realized that it really was giving me pain relief. I started taking it again, and only went up to 15mg, 3 x a day. Then I started seeing a neurologist and he had me try a bunch more, with the same result. Then, on to a pain specialist, who had a list of off label meds for me to try. I think he's the doctor who told me about the scs. I had around 75% relief. It was SO great!
I continued taking morphine because I still had pain, though not as much. The scs seems to be effective for around 3 months, and then I have to have the Abbott tech adjust it. I've gone through that three month cycle for two years, and I think that it's just not working for me.
I turned it back on yesterday after having it off for two weeks. I started taking desipramine, and it was helping, but I was going to the bathroom up to 24 times a day, so I'm now taking imipramine, which helps (I think). So, I take morphine sulfate contin and Imipram for the neuropathy pain. I take Meloxicam and Tylenol for arthritis.
I don't know what to do next. The drg stimulator is on the table, but I'm not yet comfortable with the idea, so I'm going to talk with the pain specialist about weighing the benefit of the stimulator against having a pump implant.
I have a fairly long list of medications, some for the neuropathy, for arthritis, Clonazepam for keeping my legs still at night, Prilosec, Dilantin for tachycardia, allergy meds, myrbetric to control urinary urgency, and two antidepressants, along with vitamins, etc. Sorry. Too much information!
I would love to be able to be pain free without narcotics, but for now that seems to be the only solution. I'd also like to be able to take it without the stigma. To listen to the politicians, I must be just one step out of the gutter. All of a sudden, medications that have been treating pain effectively for aeons are being denied. I'm not pleased with the change in rhetoric that I hear from my doctor. If opioids are now being demonized, how can the medical community justify having prescribed them freely and liberally, especially for people with intractable chronic pain?
Oops! Another soap box. But I think you can see the frustration.
I think I've gotten a bit sidetracked, Peggy. I'm sorry. But I think that somewhere in all of my words, hopefully I've addressed your question.
Jim
Thank you, Jim. I am getting new doctors in the state we're moving to and they treat patients like we're addicts and criminals until we prove ourselves innocent. Pharmacists and hospitals are doing it too, and my insurance company is using the 'opioid crisis' to withhold all kinds of medicine from everyone they can - even medicines that they have covered for us for years. One of my pharmacists said that the Pharmacy Board has threatened to take her license unless she reports 'suspicious activities' to them. Remember the book 1984 by George Orwell? We are living it and it's scary for people who have chronic pain. We need to write letters to our congressmen. Peggy