← Return to Long Time Survivor With Concerns re Metastasis

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@charlenesf

Hi,
I was actually diagnosed with a metastasized carcinoid of the appendix in 1974 at Mayo Rochester following discovery of a mass during a pelvic exam. I am now 76. Very fortunately for me I have had few if any symptoms over these last decades, including giving birth to twin daughters at the age of 40. I did acupuncture during the decade after diagnosis when no medical treatments were available. I did return to Mayo AZ for followup about 5 years ago just to check in, with symptoms of chronic diarrhea, for CT and nuclear scans and the usual NET blood tests. Tests were all negative but I do have numerous tumors in my abdominal cavity. Was offered debunking surgery but did not pursue.

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Replies to "Hi, I was actually diagnosed with a metastasized carcinoid of the appendix in 1974 at Mayo..."

Hello @charlenesf and welcome to the NETs support group on Mayo Connect. Thank you for sharing your remarkable story of your journey with NETs. It sounds as if you have lived a full life with NETs and with very few symptoms.

You mentioned, "I did acupuncture during the decade after diagnosis when no medical treatments were available." How was acupuncture helpful to you at that time? Were there other lifestyle changes that helped you?

Sorry— de-BULKing surgery