I'm exactly your age and my situation appears to be exactly like yours. But my journey goes back further to 2014 when when a lobotomy was done to remove part of my left lung. Monitored for recurrence for five years. I was told everything was fine.

In about three years ago, CT revealed lessons on nymph nodes, same lung and bone. A follow up pet was done and I was told it came back fine. Another follow up CT and pet done in 2022. I then started getting inconsistent messages from Kaiser doctors. That lead me to UCLA in early 2023 where I was diagnosed with lung NET with metastases to the liver lymph nodes and big bones.

I started with lanreotide injection in April and PRRT in May. So far, I have had 6 injections and 2 PRRT. No scans have been taken so far because the doctors wanted to wait for the DOTATATE scan to be taken after the PRRT cycle is completed in January 2024. However, last week, my medical oncologist ordered CT of the chest, abdomen, and Pelvic with and without contrast. I will have this done on October 20th and see the results within 3 days.

The only relevant comparative test I have done since April is my chromogranin level. It was over 6000 in April 2023. Subsequent results were 2400 June and 1600 in August, the last one. I will get another chromogranin test this month.

My health is generally okay except for the effects of PRRT and lanreotide and rib and back pain. Last week, my doctor recommended we stop the lanreotide injection until I'm done with PRRT. He was concerned about the impact of the two combined on my blood platelets.