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Autoimmune Diseases and Fatigue

Autoimmune Diseases | Last Active: Oct 4, 2023 | Replies (544)

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@kikib

I have lived with fatigue after being diagnosed with Systemic Lupus Eurythamatosis in 1985 at the age of 24. (affecting kidneys and lungs) Since then I developed Sjogrens and after 6 surgeries, Short Bowel Syndrome.
I exercise daily (walking, rowing machine) but gently. And take a nap every day. When I have to skip the nap I pay for it the following day. Ropinerol helps with restless leg that I've had since I was 16. I take it at night and it also helps with sleep.
I just had to accept the fact that I only have so much energy and I choose where to put it. After the Short Bowel Syndrome surgeries I had to retire having worked part time before this.
I feel like I am the "walking tired." It sounds like many of you can relate to this!

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Replies to "I have lived with fatigue after being diagnosed with Systemic Lupus Eurythamatosis in 1985 at the..."

@kikib I sure dislike it when autoimmune diseases take all of our energy when we really need it to deal with the disease! Have you heard of the Spoon Theory? Here is a link to the discussion on the Spoon Theory:
https://connect.mayoclinic.org/discussion/how-do-you-plan-your-day-and-conserve-energy-are-you-a-spoonie/
Think you could use any of the suggestions?