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Chromosome 3p Deletion Syndrome
About Kids & Teens | Last Active: Oct 3, 2023 | Replies (23)Comment receiving replies
<p>3p 12.1 deletion syndrome</p><p>Greetings,<br />4 years old special needs non verbal daughter is diagnosed with 3p 12.1 deletion syndrome. No one in the family has this chromosomal/genetic disorder. She is not making any progress in ABA, Speech therapy, Occupational therapy and Feeding therapy. We are familiar with 3p deletion syndrome. We are reaching out to get to know if there is any research/clinical trials/gene therapy or treatment going on anywhere for 3p 12.1 deletion ? Or if anyone can connect us with right resources/guide us in right direction please. Any help would be much appreciated.</p>
Replies to "3p 12.1 deletion syndromeGreetings,4 years old special needs non verbal daughter is diagnosed with 3p 12.1..."
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Welcome @nako, I moved your message to this existing discussion:
- Chromosome 3p Deletion Syndrome
https://connect.mayoclinic.org/discussion/chromosome-3-deletion-syndrome/
I did this so you can read through the previous helpful posts and connect easily other parents like @mcconnector @aworriedmom @jennsprung @lucygehling1176 and @5qdeletion. They too are familiar with chromosomal deletion and may have some tips regarding clinical trials, therapy approaches and resources.