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Anyone taking Trelegy ?

MAC & Bronchiectasis | Last Active: Oct 13 11:12am | Replies (25)

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@sueinmn

Renee & Rick (@rstel7272) - Yes, inhaled steroids are a risk if you have MAC, but there are some other choices.
If you have declining lung function, and part of the problem is asthma or COPD, there are inhalers that will help your lung function in the way @tumanic described, but without the steroid included in Trelegy (which may complicate antibiotic treatment.)

They are called LABA, Long Acting Beta Agonists and LAMA, long Acting Muscarinic Agonists. These help open the airways for 12-24 hours with a single dose. Anoro is one such medication, but I think there are a few others.

These are different SABA, Short Acting Beta Agonists like from albuterol and levalbuterol, which are meant to open the airways temporarily and may need to be repeated many times a day.

The long-acting treatments were developed for COPD, but are becoming standards of care for many other lung conditions because a single dose is effective all day (better compliance, less burden on the patient) side effects are less than either nebulized or inhaled SABA's, and research is showing a lessening of lung infections.

What did it mean for me?
I was able to completely stop levalbuterol nebs unless I have an exacerbation. And with my lungs always "open" I don't have to time airway clearance to coordinate with taking meds, I do it when convenient. Wonderful time & labor savings!
My breathing is better, and after a few weeks (to get enough in my body) my chronic chest heaviness/chest pain was gone. I have only needed my rescue inhaler a handful of times this year!
Finally, my exacerbations are down to one in the past 18 months, as opposed to 2-3 per year before.

So - it is worth further discussion with your doc to find one of the many inhalers now available that can work for you!
Sue

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Replies to "Renee & Rick (@rstel7272) - Yes, inhaled steroids are a risk if you have MAC, but..."

After e.5 years on symbicort, I switched to Spiriva respimat one year ago. it saved my life

Thanks Sue, I’m going to ask my Dr about these other options

Sue, I have a question, I too take Annoro but opted to take it in the evening because I couldn’t sleep at night because of accumulation of mucus. I take it around 7:30-8:00pm. I love the idea of taking it during the day so possibly no need to nebulize or rescue inhaler. Now we know can only do Annoro once every 24 hrs, so do you take anything in the evening? Or does your one dose of the Annoro last you the full 24hrs or close to it? When I first started it about 3 years ago it really lasted 12-16 hrs. But now only seems to last 8-10hrs maximum, any thoughts or advice? Your thoughts and advice are always appreciated. Thank-you.