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Mother might have neuroendocrine tumors, is being told she has IBS

Neuroendocrine Tumors (NETs) | Last Active: Oct 3, 2023 | Replies (5)
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@vmchow

Please contact Dr. P. Jaganath at Lilavati Hospital in Mumbai. You're correct that this disease is not well tended to in India, but there are resources. Also, Tata Memorial hospital in Mumbai have resources. I don't know where you are in India. P. Jaganath is also available at Continental hospital in Hyderabad. All the necessary scans ARE available in India. But you will certainly have to travel to some big metropolitan center.

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Replies to "Please contact Dr. P. Jaganath at Lilavati Hospital in Mumbai. You're correct that this disease is..."
tyrol123 | @tyrol123 | Oct 3, 2023

We took her to Apollo hospitals in Hyderabad. They did a chromogranin a test and that came elevated at 1094. But doc said possibly due to proton pump inhibitors too, so we are waiting for the urinary 5hiaa too so we can get a gallium dotatate pet which is available in their centre. And maybe I'll push them for mri or endoscopic ultrasound of pancreas too.
But isn't dr. Jaganath a surgical oncology doctor? Will he directly see the case without knowing where the tumor is?

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