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Persistent Muscle Twitches throughout Body

Brain & Nervous System | Last Active: Jan 3 11:04am | Replies (58)

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Thanks, Twitchy and Fela, for your helpful responses. You're correct, ALS (as well as multiple sclerosis and parkinson's disease) is what I was worried about. When you research muscle-twitches online, you learn that they are an early warning sign of those conditions, and then the worry and anxiety starts. It makes it hard to sleep. It's a vicious circle, as the muscle twitches make the worry and anxiety worse, and then the worry and anxiety make the twitches worse, and it becomes impossible to sleep.

My muscle-twitching actually did start in one single place in my right hand. I didn't give it a single thought, wasn't worried about it. But after a few weeks, it became random all over my body. Sometimes I can see the muscle twitching. Then I went online, learned about it being an early warning sign of ALS, etc. , and became very worried. I saw my primary care provider, who referred me to a neurologist. The neurologist is all booked up until January, so I must wait until then for an appointment.

On this very forum today, I learned about a condition called Benign Fasciculation Syndrome. Then I researched that, and it seems similar to what my symptoms are. That was reassuring, and maybe that is what I'm experiencing. I'm just going to wait and see how my neurology appointment goes.

Thanks once again to you both for your helpful and reassuring information.

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Replies to "Thanks, Twitchy and Fela, for your helpful responses. You're correct, ALS (as well as multiple sclerosis..."

I have also had them on my lip and my thumbs lol its my nerves!

I have BFS and if there is no weakness in the areas where your muscle twitches it cannot be als…. anxiety associated with worry will make the twitches worse, of course….. but never the less it’s something that is maddening and only people like us that experiences the same can understand

@moconnor166 oh my gawsh I can totally relate to the part where you said the twitching happens and anxiety becomes worse and then the twitching gets worse 😢any recommendations on what this could be?

@moconnor166 I know it has been a long time since this thread began, did you ever find out the cause? I have the same symptoms.

@moconnor166 Are you still twitching today? I started with lower left eyelid too, then it spreads out all over the body and face. Everyday. Only occur when my muscles are at rest/when I don't exert or tense my muscles. Sometimes, it causes muscle tension/tightness. Not cramp, not spasm, and no weakness. I absolutely despise this! It's been 5 weeks for me! How can I deal with this??? I have yet a 2nd appointment with my PCP and will ask her to refer me to a neurologist for further diagnostic test. All my blood work came back completely normal, including Creatine Kinase.