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Axonal peripheral neuropathy: Finally, a diagnosis!

Neuropathy | Last Active: Nov 3, 2023 | Replies (115)

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@minfromtexas

What to do now really depends on your symptoms and lifestyle. In my case, I had to give up long distance cycling due to balance issues and then I had to find new ways to structure and give meaning to my life. Art has helped. Pain management? Not so much. I think the biggest obstacle to your new way of life is the struggle of accepting how your body works now and learning to look forward, not back. And doctors....ack, so many doctor appointments trying to find the meds that may give you relief without unwanted side effects. Wishing you the best of luck. A new life awaits you.

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Replies to "What to do now really depends on your symptoms and lifestyle. In my case, I had..."

This sounds like me too. Completely restructuring meaning after losing most of my outoodr physical pursuits. Still being able to do a few things but at a radically different tolerance level. It's tough to readjust to that. If you feel like hiking a mile uphill is like what climbing a mountain used to be like...and then pay for it with a lot of pain sometimes for days after...well that's just tough. Still, we are lucky to be alive and to be able to do what we get to do. I can't really put a more positive spin on it than that.