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Foot neuropathy: What gives you relief?
Neuropathy | Last Active: Oct 4, 2023 | Replies (386)Comment receiving replies
Absolutely! I was drinking one "5 Hour Energy Drink" years ago for the caffeine boost in the morning. Used it about a year. In 2014 went to Neurologist. He asked whether I took anything with B-6 in it and I said I would check. The 5 Hour Energy Drink has about 3000% of RDA, so I stopped immediately. It stayed in my system, as it is the only B vitamin that does not excrete and high doses are, as you say, toxic, and kill fine motor nerve cells (so I've read). My PN is also idiopathic. Of course my neuropathy in both feet has not stopped, to this day, pain level 4, 24/7, even on Lyrica, Gralise and Hydrocodone. Experimenting with CBD and THC now; just got registered here in VA. Trying to get approved for the Medtronic spinal stimulator, but so far can't get it approved.
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I am so glad you figured this out. I have heard of the energy drinks causing problems. There is a FB group called Understanding B6 Toxicity where I have read reports of people, after detoxing from the vitamin and over time, being able to heal their feet. I sure hope so bc when I wear shoes my pain can easily get to a 9. It typically runs 4-7 most of the time. Gabapentin takes the edge off but it makes me cognitively fuzzy. I am hopeful I will heal too and I was disappointed you aren’t better after stopping the toxic ingestion. I took the supplements for years and have had problems since 2020. I’ve been off them less than a month. I think more patients with PN need to know about this if their PN is idiopathic bc I sure did not.
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Good evening @jpi......and a big welcome to Connect. With your response above, I can see that you are diving right into some important issues about vitamins. Thanks for the feedback. I also noticed that you are experimenting with medical cannabis. I find the tinctures and topicals to be extremely valuable for my situation of SFN -- small fiber neuropathy. It does require studying because you will be the prescriber as well as the patient. Many of the dispensaries have special cannabis pharmacists that can help you. It has now been 10 years since my first "experiment" and I depend on my selections to help keep the pain under control.
The other treatment that reduces the pain in my battle with SFN is MFR, Myofascial Release therapy. There is a discussion on Connect for MFR. Here is the link.
MFR......connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
Do you have numbness? Who does not approve of your spine stimulator? I am going to reach out for my mentor colleague @jenniferhunter who has much more experience than I do with spine details.
May you be safe, protected and free from inner and outer harm.
Chris