← Return to New Here and need to learn fast

Discussion

New Here and need to learn fast

Lung Cancer | Last Active: Oct 31, 2023 | Replies (69)

Comment receiving replies
@sayitisntso

Hi and thank you! I’m responding to all in one response because today wiped me out and needless to say I’m extremely nervous.

In short, I called my Pulmonologist to see if he received the report and learned he’s on vacation this week. I think my heart stopped because they also told me they can’t send it to me until the dr reviews when he gets back next week. No, they hadn’t received the report and would call me when it came in, and would fax to the other drs. then stating that they’ve seen them take up to 5 or 6 days. Moments later Dr #2’s office called me and told me I must bring the PetScan disk with me. I was working, so called the hospital and by some small miracle got a live person who promised to get the disks made but told me the report still wasn’t ready so to give it a few hours. I went at 3:30 to pick them up and was told the report still wasn’t ready and that they have up to 72 business hours, excluding weekends. Had to rush back for a meeting when my pulmonologists office called me and shared that they hadn’t received the report (I knew this) and that the girl is out of the office tomorrow morning and no one else has access to the system that receives reports.

I am grateful that I have the PetScan and CT Scan disks for each dr and assuming they will know what they are looking at with the PetScan without a report.

The questions you guys posted are so appreciated… I honestly can’t thank you enough! I’ve taken snapshots of them so they are neatly in my file on my phone.

Please if you’re so inclined say a prayer for me.

Will hopefully be up to sharing what happens tomorrow in the evening.

Thank you ALL!

Jump to this post


Replies to "Hi and thank you! I’m responding to all in one response because today wiped me out..."

You don't say where you are located but if you are in the US your reports should be posted online without waiting for your doctor to tell you what is in them. That is the law.
To see them you should create an account with the providers. A small provider will send you a link and temporary password. Larger clinics have much better sites and include everything.
Have you talked to them about posting reports online? I see ALL my reports (and test results) as soon as they have been written. I read them so I know what to ask the doctor and have some idea of what he/she is talking about. Also read the Doctor's visit notes which should be posted as well. Many of us have noted that there are mistakes in Doctor's notes.
Also most places will send your scans electronically or fax to the next provider for you. You don't need a CD.

US LAW:
The 21st Century Cures Act became law in 2016 to improve access, exchange and use of electronic health information. The information-blocking exceptions, which went into effect in April 2021, codified provisions that required nearly all electronic health information – including medical test results – be made immediately available to patients once the results are ready.