Dais-
I am a 34 year cancer survivor who had a ton of radiation to my head. This has caused scarring on my trigeminal nerve on the right side of my head. In 1995 I had a couple of branches of that nerve cut, which helped the pain for a few months. Then my nervous system found a way to "reroute" that message to my brain that I was still in pain. At that time i was on 300mg of oral morphine and still miserable. In 1998 I found out abouI have t deep brain stimulation and found a neurosurgeon who was doing them for pain in Georgia. After we talked an hour on the phone I went to see him. He decided I was an appropriate candidate and I had it put in in 1999. It did work for me, and cut my pain meds in half (plus my quality of life improved quite a bit because my pain was back under control). I have had it now for 19 years and it still helps with the pain. I think you said you have abandoned the idea of trying one of these. If you ever change your mind, do your research and find a good neurosurgeon who has experience with this surgery. I see Dr. Peter Konrad at Vanderbilt Hospital. He is very good, but he may not be a good geographical choice for you. Once you find a good neurosurgeon you are happy with, talk to them and see if you are an appropriate candidate for a stimulator. I have neuropathic pain from what they call osteoradialneucrosis ( my nerves being damaged so badly and dead bone in my head from all of the radiation I got years ago). Good luck in your search for relief. I do not know what part of the country you are from, but CBD oil and marijuana can be very helpful with chronic pain. Just google "marijuana and chronic pain." There are studies out there that show this, yet it is still considered a schedule 1 drug. Marijuana is illegal here in Alabama so I am out of luck. It is the only thing that has taken away all of my pain, and the pain clinic here where I live says that many patients will not try other medications they offer because the patients don't want to give up using marijuana. CBD oil should be legal in all states because it has very little THC (the ingredient that gets you high) in it. Do some research on the cannabidiol system. Very interesting. I wish you much peace and I hope you get relief soon!!!!