← Return to Merkel Cell Carcinoma: I'd like to hear from others

Discussion

Merkel Cell Carcinoma: I'd like to hear from others

Neuroendocrine Tumors (NETs) | Last Active: Oct 20 7:30pm | Replies (133)
Comment receiving replies
@rogermcintire

I’m Stage 3 Merkel carcinoma and will meet with oncologist in two days< /p>I’m just wondering what the side affects of immunotherapy are. I’m a healthy 81 year old male.
Also this is my first post.

Jump to this post

Replies to "I’m Stage 3 Merkel carcinoma and will meet with oncologist in two days< /p>I’m just wondering..."
elizabethc0394 | @elizabethc0394 | Oct 7, 2023

Hi - sorry to hear that. I, too am Stage 3 Merkle cell carcinoma, diagnosed in April.

I am 57 year old woman - survived breast cancer in 2015. I am otherwise healthy and very active. I wasn't sick one day with the chemo I received. This immunotherapy has made me very sick. I started a two drug (IPI & Nevo) regimen immediately after diagnosis. I didn't get sick until after the third treatment, pancreatitis and colitis. This forced me to stop the cancer treatment until the steroids (really high dose prednisone could get it under control)
After more than 3 months, I finally received another immunotherapy treatment since my pancreas numbers were close enough to normal. Yikes, right back to pancreatitis. Back on prednisone 🙁

This is my first post as well.

VIEW AND REPLY