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Updating about My Lanreotide Injections & CT Scan
Neuroendocrine Tumors (NETs) | Last Active: Jun 15 10:40am | Replies (61)Comment receiving replies
Hi Nana120
I can relate to you. I am having my 3rd Lanreotide this week. I was on a 4-week spread but lost it 1 week prior, so now I am trying a 3-week spread. Just had a CT scan and waiting to hear if my liver tumors are stable (they also grew 20% in 2 months). It's all so tricky and such a balancing act for each of us. Perhaps the best news is that, due to more sophisticated testing, more people are found with NETs which means more attention given and hopefully a cure.
Replies to "Hi Nana120 I can relate to you. I am having my 3rd Lanreotide this week. I..."
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A huge “YES” to more education for the general public even those in the medical field. I cannot count on both hands the number of people (some even at my local oncologist’s office) that never heard of NETs. When I was first diagnosed I thought it was even more rare than I have come to find out now. We are blessed to be on the cutting edge of new medications even if we are the test cases!