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Anyone else get bloating and abdominal pain from NETS or Lanreotide?
Neuroendocrine Tumors (NETs) | Last Active: Feb 26 7:54pm | Replies (77)Comment receiving replies
Thanks for the update, @spinhead. I hope that you will post again after your Gallium Scan on the 11th and I hope that gives you an understanding of what help the Lanreotide injection(s) provided for you.
I look forward to hearing from you again. Will you continue to post with your concerns and questions?
Replies to "Thanks for the update, @spinhead. I hope that you will post again after your Gallium Scan..."
After getting my gallium scan they found no changes, no spreading. Basically nothing has changed so I’m staying off the lanreotide unless things change because for me the side affects were worse than what the cancer symptoms are. I do want to express though what works for me may not work for others so please listen to your oncologist. I also want to express that if you have the opportunity please seek help from Mayo Clinic if you possibly can. They have the best most advanced knowledge on neuroendocrine tumors. If you’re getting treatment elsewhere please at least give yourself the benefit of having Mayo give you a 2nd opinion. This is your life, make it last. God bless each of you and I pray for you all 🤗🙏♥️♥️♥️
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Absolutely will post after the gallium scan. If what I experience will help even one person than I feel blessed the the good Lord has afforded me the privilege of doing so.