Axonal peripheral neuropathy: Finally, a diagnosis!

@ch665296f, There is another discussion where members have posted about your question here:
-- Do you have urinary incontinence after prostatectomy & radiation?: https://connect.mayoclinic.org/discussion/urinary-incontinence-1/

You may need to be tested for autonomic neuropathy, which can cause incontinence. I'm not sure if that possibility would apply to your case, but you could ask the neurologist.

I was diagnosed with axonal peripheral neuropathy in February 2017 so welcome to an exclusive club, we are special. I also have Parkinson’s so I am extra special.
The axonal bit means that the axons on your nerves are degenerating so gradual loss of bodily functions. The peripheral bit means you lose feeling in your feet and lower legs and possibly hands so affects walking and balance. No treatment no cure, just exercise and a positive attitude and remember there is always someone worse off. Try and find a neurology exercise group. Bowel and bladder management is very difficult. I see a very good pelvic floor physiotherapist. Keep busy and enjoy every day

To NJ Ed
I have bi-lateral drop foot due to axonal peripheral neuropathy. For several years I was using AFOs that fit inside my shoes. I even had custom made AFOs that did not work for me at all. I changed orthotic clinics and learned about TurboMed AFOs. These AFOs clip to the outside of your shoes and are a game changer! I wear shoes that actually fit my feet and have much better mobility. You might want to check them out at: Turbomedusa.com

@mjmarshall - Thanks for the information! The odd part is that I rarely see people out and about with AFO's. The AFO's I currently use work for me and provide much improved balance and control my drop foot. However, I am always looking to improve things and I will definitely check out the info on your post. Again, thanks, much appreciated. Ed

My neurologist said there was no test for autonomic neuropathy. What is the test?

I have weight bearing loss of balance from either my feet and/or my legs. I go for SFN biopsy in a few weeks. EMG was normal. I was finally diagnosed by a new rheumatologist who recognised my Sjogren's symptoms. No pain, no numbness, no tingling. I do not know if it is axonal or what part of the nerves are involved. I just went for 5 days of IvIg (I was also IgG low) and will continue with 1 infusion every 3 weeks for 3 months. Anyone else have anything like this?

Axonal doesn't mean "loss". It means long nerve cells as opposed to short fiber cells.
ditions like multiple sclerosis or Guillain-Barré syndrome are examples of demyelinating neuropathies.
Symptoms of axonal peripheral neuropathy can vary depending on which nerves are affected and the underlying cause. Common symptoms may include:

Numbness or tingling in the affected areas.
Muscle weakness or atrophy.
Loss of reflexes.
Burning or shooting pain.
Difficulty with coordination and balance.
Sensory disturbances, such as hypersensitivity or loss of sensation.
Treatment for axonal peripheral neuropathy depends on the underlying cause. In many cases, managing the underlying condition (e.g., controlling blood sugar levels in diabetes or discontinuing the use of a toxic medication) can help slow or halt the progression of neuropathy. Medications may be prescribed to alleviate pain or other symptoms, and physical therapy can be beneficial for improving strength and mobility.

Early diagnosis and management are crucial in addressing axonal peripheral neuropathy to prevent further nerve damage and improve the patient's quality of life. Neurologists and other medical specialists are typically involved in the evaluation and treatment of neuropathies.

What do you mean AFO’s?
I also see vey few messages from people with axonal on.
A I also have a spinal stenosis which affects my balance and walking.

QSART test and sweat test. The sweat test is only available at a few locations.