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Cavitary MAC Resolved Completely on CT Scan?

MAC & Bronchiectasis | Last Active: Oct 17, 2023 | Replies (59)

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@bellsina71

I completely agree! It's wonderful to know that other people have gotten rid of this. Honestly, I think it has something to do with your DNA or something because some people can nebulize and take a lot of antibiotics and just not have a lot of luck. And then some people have all the luck with the antibiotics and the nebulizing. I agree that we should definitely stay on the azithromycin, and do anything else we can do because Mac likes to hide! My doctor wants me to keep taking everything for another 6 months. Right up through a year. He said. If I don't have any reoccurrence then they'll probably slowly take me off things. But I'd like to stay on the azithromycin and I hope he'll have me do that. I'm really happy to hear that other people have had this clear up as well. I was a little scared because of how quickly mine was going from one lung to the next. They had me scheduled for a CT guided lung biopsy and I was terrified! I went into that room and I was nutcase, I was crying. I didn't know I was going to have to be awake for this. They did the first initial CT scan and it showed such improvement just 2 weeks after I started taking the antibiotics that they said I didn't have to have the guided lung biopsy. I was so happy. Things only got better from there. The reason why they wanted to do that is they always think that this could be cancer when you have a cavity like that. That's thick walled. I think back during the last 6-7 months with this Mac and it's been a rocky roller coaster, but I wouldn't trade my experience for the world because I can help other people because of my experience and so can all of us on here! ❤️

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Replies to "I completely agree! It's wonderful to know that other people have gotten rid of this. Honestly,..."

The only place where I don't agree with your very encouraging post is when you say, "... But I'd like to stay on the azithromycin and I hope he'll have me do that..." That's a very bad idea for a couple of reasons.
First, even though we use it routinely with MAC, and people talk about using a Z-Pak all the time, it really is a "big gun" and needs to be reserved for when it is truly needed. If you stay on azithromycin alone at the end of your treatment, any MAC left in your lungs will become resistant to it. If you later have a bad flare, what will they give you?

Otherwise, please keep on sharing - it helps to hear success stories.
Sue

I agree with you too. What will be will be. I think I have the willpower to feel good for years. Someday it may get me but untill then I’ll be rolling along😃

So, you only took Azithro?