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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 5 days ago | Replies (845)

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@khushi80

Hello everyone. I am Khushi and have been operated for borderline malignant Phyllodes in the left breast in 2019 (without radiation ). It reoccurred in the same area ( local recurrence ) in feb 2023 and this time it was categorised as chondrosarcoma and osteosarcoma. We again did radical mastectomy and got the entire left breast removed , this time followed by 28 session of. Radiotherapy. The current PET scans of sept 2023 are showing spread in the lungs. Wanted guidance from all of you regarding personal experiences or recommendations of the line of treatment that we should opt as this is a third recurrence. What is the latest line of treatment adopted for such a disease and how can we tackle this in the best possible way. Lots of love and strength to all going through this.

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Replies to "Hello everyone. I am Khushi and have been operated for borderline malignant Phyllodes in the left..."

Welcome, @khushi80. I see that @johnsoncs1 has also posted about a cystosarcoma Phyllodes tumor in breast. You may wish to also join this related discussion:
- Anyone diagnosed with Phyllodes tumor?
https://connect.mayoclinic.org/discussion/phyllodes/
I'm sorry to hear about the repeated recurrences and now spread to the lungs. What treatment options are available to you?