I had a 1.8 cm mass found on my kidney on a scan following a mastectomy. It was an incidental finding but one that needed to be addressed before chemo/radiation could begin. I saw a Urologist who advised to have a biopsy/ablation of that mass after chemo and radiation ended. The biopsy revealed "renal oncocytic neoplasm of indeterminate malignant potential" , sample size for the biopsy was very small so still at risk, so Active Surveillance commenced. For the past 3 1/2 years I have had periodic enhanced CT Scans (3-6 months apart) of the abdomen. As of 1 year ago the tissue in the area was showing changes. I got really confusing descriptions and reports of the changes in general, what the changes indicated, next steps, etc. I specifically asked if they were indicative of a RCC and was at first told NO; that later changed to very likely RCC. The unclear communication between Urologist, PNA and me was a BIG problem. Add to that unclear/undefined RCC means that it just hasn't evolved enough to know what it REALLY is and Active Surveillance until it meets a certain size or other symptoms occur seems to be the norm. I switched doctors to one at a facility where roles are more clearly defined and DOCTORS do the Active Surveillence. I will see the AS Urologist until the mass reaches a size or conditions to warrant surgery. At that point I will move on to the Surgeon. Eventually they seem to have determined that the mass is likely a chRCC (chromophobe Renal Cell Cancer) as the shape and color and configuration on the last scan showed more than the others. I had an MRI instead of a CT and I think it gave them more detail?