← Return to DISH (diffuse idiopathic skeletal hyperostosis) or Forestier's

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@badboy

First and foremost, I feel your pain and frustration. Not knowing how we got this condition or the fact that many Doctors look at me funny when I bring it up!! They don’t know much about DISH disease. Remembering back. I’m sure it all started when I was trying to pick up a Load of firewood and lost my balance and rammed my head into the garage siding. Came to not sure how much longer. But my point is. It helps knowing what caused it first. The docs all asked did you play sports, car accidents or falls? Yes to all. Went to many Doctors, Tylenol and physical therapy. Out the door. Lol So finally a sports medicine doctor diagnosed me with A.S. And put me on Gabapentin and a local shot in the back. All that did was make me sit on couch and stare at the wall. So arthritis doctor said I have Dish disease not A.S. So pot me in Celebrex and Tylenol. Nothing. Then I started having trouble swallowing. Had to have surgery on my neck removed bone overgrowth of my spine pinching my esophagus. Plate in front and fused two vertebrae’s in neck. Since then been on Tramadol, Tizanidine, Cymbalta (worked the best for pain but didn’t like side effects) tried Diclofenac/Voltaren (allergic to those) Meloxicam and Aleve worked but tore up my stomach!!!! Lastest is Pregabalin. Ok but side side effects and weight gain. I’m going back to drawing board. I feel movement and finding what medication works with no side effects. You have to be diligent, Doctors just say try this!! I know it’s hard, feel like you want to give up but don’t!! Find the positives in your life to keep you going. Mine is to walk my daughter down the isle her wedding day and my grandkids and my wife, gets grumpy at times with me but she admits she doesn’t know how much pain I’m in. I told her I wouldn’t blame her if she left me, holding her back, but she won’t. Wonderful lady!!! Go thru a lot emotions each and everyday, feel ok, hurt bad, lay in bed, cry in the shower, done it all. Sorry I was long winded but maybe I needed to vent, feels better. Thank you. All of you in my thoughts and prayers!!

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