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Squamous cell carcinoma (SCC) P16+

Head & Neck Cancer | Last Active: Apr 4 8:21pm | Replies (110)
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@buzzltyr57

Thank you for your story. I will check into the Proton vs Photon issue. I'm finding myself wondering if the "cleanup" is necessary or just revenue stream? What if surgery with clear margins gets it all? What happens if there is no Rad and no Chemo? No damage? no burns? no tooth destruction? no dead taste buds? no fatigue? Seriously! What are the risks? 1 in 100? 1 in 1000? What are we talking here? I'm going to need to ask this question of the Doctors.

Sorry for the rant but I can't seem to help it. I need some answers.

Thanks again for sharing your story - I do really appreciate it.

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Replies to "Thank you for your story. I will check into the Proton vs Photon issue. I'm finding..."
jonesja | @jonesja | Oct 2, 2023

I too just wanted it gone ASAP so I opted for the surgery. I feel my TORS surgery cured the cancer with the negative margins. Also one of my lymph nodes was wrapped around the jugular so they removed my jugular. I am not sure if they can with the carotid artery.
The Path report on the Nodes was more unclear so they suggested radiation and short course of Chemo . I agreed to the 30 Radiation treatments on the tumor bed and Nodes but I declined the Chemo as I understand it only offered 3% better outcome. Of course they will recommend what they are fairly confident will cure your cancer or a "standard protocol" I suppose that is their job but I agree the radiation side effects can be brutal and life long. If I had it to do over I probably still would do the radiation just to be sure they got it all. Easy to miss a few cells and then the process starts over. Check into the NavDX blood test for HPV cancer. It is about 95% accurate from what I understand but still not widely accepted . My last NavDx blood test was 0 or non detectable.

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