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CLIPPERS: Looking to connect with others

Autoimmune Diseases | Last Active: 3 days ago | Replies (308)

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@liztbnr

I have a gut feeling that Barrows will probably shy away from this whole mess. I'll just resign myself to 8 mg of pred a day forever. I will be seeing a neuro there, but, hey, so what? I have seen neuros over the years and they have been no help at all. I have read about MSA-C, and this is a neat little box to deposit me into. No worries about meds (none for this disease), just go home and wait. Troublesome old woman.

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Replies to "I have a gut feeling that Barrows will probably shy away from this whole mess. I'll..."

Hi. I don't often chime in just 'cause I have little info to add, but I wanted to say that my heart goes out to you with that diagnosis. However, it seems quite uncertain and you never know! There are so many fascinating treatments and discoveries coming from studying longterm COVID, many of them relate to our weird auto-immune maladies. All we can do in the meantime is make the best life we can with whatever it is we (think?!?) we have. My goal is to find peace and enjoy each precious day with my face in the sunshine (or rain). I have found your contributions to this forum to be very helpful and important, please keep them coming.