Hi Theresa, thank you for the list of NET oncologists.I saw one in my area and will call tomorrow to make an appointment. The oncologist who my husband is seeing presently, told us he has never had a similar case. He’s consulting with MD Andersen to find a treatment plan. As far as how his cancer was discovered was because he was having black stools, called his doctor who told him to go immediately to the ER. He was admitted to the hospital. They realized his hemoglobins were very low, he had an endoscopy and they found a bleeding ulcer. The biopsy revealed cancer cell. The tumor was removed, he had a endoscopic dissection two weeks ago. It was in between the second and third muscosa of the esophagus. He has no symptoms, no trouble swallowing, no reflux and no pain in his stomach. He doesn’t fit the profile of somebody with esophagus cancer. I have given a lot of information to help you understand his case.