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Brain Tumor Support Group - Compass Connect Event Date: October 3, 2023 | 2:00pm - 3:00pm ET

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@melissajessie

I have a brain tumor but what is a PRIMARY brain tumor. I have 2 hemangiomas. Depending on what/whose medical literature you read it is of concern & must be watched and if it becomes too large or creates untoward s/s it will need to be removed. Other literature blows it off. Stating people usually still have the tumor 30yrs later when they die. Stating they hardly ever cause any problems.
I was told that a brain scan once a year is plenty enough for follow up.
Would I be appropriate for this group or would they all be seriously ill, in which case I would not feel comfortable.

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Replies to "I have a brain tumor but what is a PRIMARY brain tumor. I have 2 hemangiomas...."

From my understanding, a primary brain tumor is a tumor which began in the brain. Other types of tumors are metastatic - they are cancer which began elsewhere in the body and migrated to the secondary location, the brain.
You are welcome anywhere you feel comfortable in Mayo Clinic forums. I've never seen anyone excluded.
I hope your find the support and information that will help you.