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You are very lucky to have gotten rid of MAC so soon and without any side effects. I have been on Big 3 for one year now and have suffered terrible stomach issues and diarrhea lasting for a few months no matter at what times I took the drugs or with food/no food. Now I am having debilitating body aches which everyone tells me is sciatica, but I have had sciatica before, and that pain can't be compared. Also, my tinnitus has gotten worse and if you ever experienced tinnitus, you would know that it's a debilitating condition where you can have a high pitch sound ringing in your ear nonstop and when it gets really bad no noise machine can mask it to help you sleep. Also, my eyesight is getting worse, though very slowly. It is such a blessing to knock MAC off so well and quick, but unfortunately the MAC experience is very different for different people. When people and doctors tell me, stay on the drugs, which I am now supposed to take 7x a week, I just don't see it being worth it. The only things that really makes me feel better are nebulizing 7pc saline and the vest. I am only 49 years old.
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I am so sorry to hear about all the problems you're experiencing. I think part of the reason that I haven't had a lot of issues with my stomach, and diarrhea etc. Is twofold. I don't have colon since I had that removed at 38 from colon cancer, things kind of go right through me so I always have diarrhea. I wouldn't notice that! Good or bad. That's the way it is. But another reason, the biggest reason is because I've only been on two of the three antibiotics. I have been on azithromycin and ethambutol and started the Airikayce about 3 months ago. Have you been on that? It is supposed to be a miracle drug for people with Mac. That's what my doctor told me. If you haven't been on that, it would probably be really worth your while to ask your doctor about it. You might get excellent results if you're not getting the results you should be getting from the antibiotics. I am 52 so I am right in your age group, and I can't imagine living in that much discomfort every day. I'm very sorry to hear about that. I wish there were things that your doctor could do to make things easier for you. You. A lot of times when you are having problems. Digesting the medication, they will actually have you come down and only do it three times a week, there's got to be something else they can do to help you. Let me know if you've been on Airikayce at all? If you haven't, please ask your doctor because I think that would make a huge difference for you with clearing it up. It really works!! Once again, I'm sorry and let me know if you have any questions. I also agree with you that some people have a harder time getting rid of this than others do. I was just telling someone else that I think it has something to do with your DNA and how your body reacts to antibiotics, etc..
❤️Angela