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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 1 day ago | Replies (845)

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@everythinglucky

I was recently diagnosed with Synovial Sarcoma. I had one tumor in my left lung and I have a large tumor in my mediastinum (near my heart). The doctors are trying to determine a treatment plan to remove the large tumor. The surgeon who removed the small tumor said that he would not operate on me to remove the larger tumor because the surgery would be too risky. I hope your niece get better with the treatments she is taking. I am in a waiting stage. I don't know if they are going to operate or give me treatments first. It took them three months to determine what type of cancer I had. Blessings to you and your family.

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Replies to "I was recently diagnosed with Synovial Sarcoma. I had one tumor in my left lung and..."

Hello @everythinglucky and welcome to the Cancer support group discussion on Mayo Connect. I'm glad that you found this forum. It is a great place to share your experiences and encourage others as well as be encouraged by the stories that others will share.

I see in your post that you have had one tumor removed. How long ago was that surgery? What type of treatment plans are being explored regarding the larger tumor near the heart?

Memorial Slian Kettering has a new trial but you have to have a certain mutation. Here is a link to all their trials for synovial sarcoma.
https://www.mskcc.org/cancer-care/types/soft-tissue-sarcoma/clinical-trials