← Return to Merkel cell-radiation effective on chest-new 2 cm spot on liver

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@lilbitnwv

I was diagnosed with merkel cell when a spot came up on my knee. It looked like a blood clot and was real warm. So in July I went to my physician and he referred me to another doctor. Then that other doctor referred me to a tumor doctor. So by that time it had mestatic to my lymph nodes. So within 4 months I had 2 biopsies one on my knee and one on my lymph nodes. I went to surgery in November to have the tumor and lymph nodes extracted. The tumor on my knee had grew to 5 cm and 1 of the 3 lymph nodes was about ready to bust. I have been on opdivo and yervoy since January 2023. They made me real tired and yervoy made my bones ack. So after radiation on my knee and groin I was able to come off yervoy. I have a positive attitude and put everything in the lords hands. I go this month for my mri and cat scan.

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Replies to "I was diagnosed with merkel cell when a spot came up on my knee. It looked..."

Hello @lilbitnwv and welcome to the Merkel Cell support group on Mayo Connect. I'm glad that you found this forum. It helps to have encouragement and support whenever you are dealing with a rare form of cancer.

I appreciate that you have been proactive in following through with the recommended surgery and treatments. I'm sorry to hear that the chemo treatments resulted in so much fatigue.

Are you still experiencing a lot of fatigue?