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Lichen Sclerosus: Any other women dealing with this disease?

Autoimmune Diseases | Last Active: 4 days ago | Replies (323)
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@babette8

Hi Everyone,
I read all your comments with interests - thank you so much for posting them.
I have just been diagnosed with vulva lichen sclerosus. The recommended medication was steroid ointment. I haven't started it because I have osteoporosis and I am anxious about the possibility of some bone resorption. I have another chronic inflammatory disease - MGUS. It can't be treated with any medications and has led to bone resportion. I am not on any medication for osteoporosis either. I am about to enrol in a special exercise program for osteoporosis which I hope will keep it stable. My reading is just a little bit over the range.
(1) I would be so grateful if anyone can tell me if they are using a non- steroid ointment which is working or any
other treatment apart from steroid ointment.
(2) Does anyone have another chronic inflammatory disease co-exisiting with Lichen Schlerosus.
Essie
PS I was told that a cold bath with Epsom Salts would help the itching. You need to stay in the bath for at least 10
minutes.

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Replies to "Hi Everyone, I read all your comments with interests - thank you so much for posting..."
Lulu555 | @laurierieman | Oct 3, 2023

Hello Everyone,

This is my first time posting. I have had Lichen Sclerosis of the genitals for 16 yrs. I tried all the creams and ointments prescribed to me, but it seemed hopeless. My Aunt uses herbal medicines and suggested I try Neem Oil mixed with Green Tree Extract, after a week of using this It’s went away! I was very surprised, so the net time I had a flare, I used this same treatment and after a few days it was gone again. Over the years this has worked for me. This is my experience, please consult your doctor before trying this. I also have Morphia with Lichen Sclerosis and this treatment has slowed down the skin changes I have experienced. Don’t lose faith.
I hope this helps someone!

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