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DiscussionSeeking advice on treatment options
Prostate Cancer | Last Active: Oct 6, 2023 | Replies (35)Comment receiving replies
Replies to "Hello, it sounds like you have been pretty thorough in your research. After monitoring my rising..."
I too was on TRT since 2008 but my PSA did not rise in over 5 years. It varied from 2.9 to 2.2. The only reason I caught it was because of my female endocrinologist did a full PSA test last year. She did the normal PSA but added the PSA FREE and PSA FREE %. My % was low which made me investigate further at Mayo Phoenix. Went for the MRI followed by the MRI Fusion Guided Transperineally biopsy when the MRI showed a 7 mm lesion. Had 30 cores taken due to the size of my 120-gram prostate. I had four positive cores out of 30. Two were 4-and two were 3-4 and the rest of the prostate was clean and normal. My PSMA Pet Scan also showed it confined to that one area. At 73 I did not want surgery as too many stories of incontinence for me to be comfortable with that option at my age. My radiation oncologist wanted me to do a 6 month Lupron shot and 28 proton treatments. I told him with my TRT I did not need it because my endocrinologist and I had already experimented with no testosterone, and I went castrate without a shot since I had been taking it for 15 years. I experimented once on my own and stopped the Androgel 2 days before my blood work and again I was castrate. He didn't believe me and had me tested after two week and I was at 12 ng/dl which is lower than the Lupron shot promises. I have been at 12 for 8 months and just started back on the gel today. I have a Dr. at Mayo who will watch everything. Instead of the 28 proton treatments I did the five SRBT treatments and my PSA after three months was less than .1 or as they said undetectable. Sure felt like crap without the Testosterone.