Hi, fala (@fala)

When you say, “I always hope there is something new to try,” you’re in good company. Just about everyone here in the Forum would shout, “Me, too!” I sure would. It’s human nature to resist a harsh reality, particularly if countless hours and countless dollars may one day actually produce a cure, or if not a “cure,” then at least something that might offer meaningful relief. It’s been hard for me to adjust to my disease being incurable.

I’m in the middle of changing doctors. Tomorrow morning, I’ll have a tele-meeting with my new neurologist (a woman I’ve met before, so she’s not entirely “new”). I plan to tell her in the first few minutes that I know my neuropathy is not curable. I want to tell her that up front so she won’t think I’m expecting her to come up with a cure. At the same time, she’ll know – and I’ll know – that we’re each hoping that the day will not be too long in coming when there will be either a cure or a meaningful therapy. My goal is for the two of us to build a sustaining relationship on that unspoken hope.

I wish you 20 tons of success in finding relief – and finding it soon!
Ray (@ray666)