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4 treatment options from my doctor, which one should I start with?
Neuroendocrine Tumors (NETs) | Last Active: Aug 2 5:00pm | Replies (73)Comment receiving replies
Hello @snowflake0731 and welcome to the NETs support group on Mayo Connect. I am pleased to see that you are seeking support and encouragement as you begin this NETs journey.
I see that @jlu has already replied to you about her experience. She made an important point about seeing a NET specialist. As this is a rare type of cancer, a general oncologist may not have the specific training and experience in treating NETs. Getting a consultation with a NET specialist early-on in the diagnosis is invaluable. There are good NET specialists at all of the Mayo facilities (here is a link with appointment information http://mayocl.in/1mtmR63). If for any reason you are not able to consult at Mayo, here is a list of NET specialists (world-wide), https://www.carcinoid.org/for-patients/treatment/find-a-doctor/
If you care to share more, please share a bit about how your husband's diagnosis came about. Was he having symptoms that led to scans and a diagnosis? How is he feeling? Will you post again and share as you are able?
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Hi Theresa, thank you for the list of NET oncologists.I saw one in my area and will call tomorrow to make an appointment. The oncologist who my husband is seeing presently, told us he has never had a similar case. He’s consulting with MD Andersen to find a treatment plan. As far as how his cancer was discovered was because he was having black stools, called his doctor who told him to go immediately to the ER. He was admitted to the hospital. They realized his hemoglobins were very low, he had an endoscopy and they found a bleeding ulcer. The biopsy revealed cancer cell. The tumor was removed, he had a endoscopic dissection two weeks ago. It was in between the second and third muscosa of the esophagus. He has no symptoms, no trouble swallowing, no reflux and no pain in his stomach. He doesn’t fit the profile of somebody with esophagus cancer. I have given a lot of information to help you understand his case.