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zjandre (@zjandre)

Implantable neurostimulator for chronic pain

Spine Health | Last Active: Sep 29, 2022 | Replies (333)

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Like everything and every procedure there are good and bad results. I had over 80% relief with the temporary one. I had an excellent neurosurgeon do my surgery for my stimulator and amazing follow up with St. Jude. I can not praise my St Jude rep enough. She meets me any time I need her to and will answer any question that I have or research it and get back to be with an answer. Like every other thing I have done for pain relief I went into it with an open mind and asked a million questions. I had a great team for support. My Pain Mgmt Dr, my neurosurgeon’s staff and the St Jude rep. all answered questions and helped the best to make my experience very plesent.

I LOVE MY STIMULATOR!! I sometimes turn it low when the pain is not as bad and I use a couple programs that are my favorites. When my pain is bad I turn it higher and if it doesn’t feel as though it’s working I change the program to get a different massage feeling. I have L-1 to S-1 pain and when it was implanted it was to help the area of L-1 to L-5. Since my back is continuing to bulge and the discs are getting worse around the area it seems to not work as well as I need it to some days. This is not the fault of the stimulator at all. It’s just my discs continue to fall apart in my back. I can’t expect something to do more than what it is capable of or in an area that it was not meant to work. But I love it. I also have sciatic pain and it helps immensely in that area. I can turn up the side that radiates pain and have it work stronger on that side. This helps so much.
A lot of people say they feel like it’s lightening shooting out of their legs or they feel really bad vibrations from it. I have never had any of that unless I turn it up way too high for what I need. I even have the older model.
I love the ability to have several programs or massages types added. So if one seems like it doesn’t work or feels like it is working less, I just try another program. I have a great relationship with the rep and see her about once a year. She adjusts it and the area I need more help with and adds whatever programs I want added to it. We have sat several times in the office and just gone through the programs. She adds them to my device and turns them on, it I like the way it feels I keep it. If not she deletes that one and we try another one. It is a long process but it feels good to try the different options. She will load my device with several of them and I can change them whenever I want to by just calling her and meeting up with her.
I have had it for about 5 years now and I believe it has kept the pain in a reasonable, manageable position for me.
The drawback to it is that once implanted it only works for those specific discs that it was implanted for. So if my neck hurts like it does this morning it will do nothing for me. I will eventually need another one implanted for my neck my Dr thinks.
I also find that turning it up makes me feel energetic and “stimulated” and helps me get motivated to get moving and get stuff done. Sometimes I feel the sensation on my legs makes me cold in the summertime air conditioning so I have to adjust it several times in the summer days.
All in all I Love My Stimulator!! If you have any questions feel free to reply to the post and I will try to give you personal experience type answers if I can.
Thank you for posting and I hope you find some relief. ❤️

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Replies to "@zjandre Like everything and every procedure there are good and bad results. I had over 80%..."

If i have 456789 disk pain how many stimulators would they give me?

@allsmiles5 I assume it would depend on how many and where the leads are in the wiring. Best of luck – I also have 8,9 and 10 pain, but have had no relief from stimulator fusions, epidural procedures of all kinds and tne 40 odd meds do not agree with my body or do nothing. It is one stimulator, I would think, with the implanted battery pack and your remote which can be programmed for the areas of pain. 2ladyjane85

Before you get a stimulator you have to go through a few different options such as injections. You just can’t go to the Doctor and say I’ll take a dozen. Good luck!

You mentioned St. Jude rep. is that the hospital in Memphis, TN or from the company that made you stimulator. What area of the country did you have your surgery? In reading these posts, your post is the only one that seems to be favorable. My pain specialist has suggested that I go to a neuro-surgeon to discuss having the stimulator surgery. Reading comments here is scary for me!