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Has anybody ever heard of anything like this?

Neuropathy | Last Active: Oct 2, 2023 | Replies (38)

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@rnlorena

I think it does. Most of my nursing career I worked as a hospice nurse. Part of that requires a lot of listening and understanding. That was the best part of nursing that I ever did. I can relate to people who are having a rough time because I have had rough times too. When you have a lot going on with your health and you are worried and unsure and can’t get answers it creates anxiety which can take its toll in addition to everything else. Reading peoples stories have given me different ideas about things. Someone once said to me don’t go down that rabbit hole. You do have to keep it in perspective when you read medical things. I firmly believe that reading has helped me to understand things that I didn’t know about my medical issues. I certainly think back when I was diagnosed with small nerve fiber with no known cause. The doctors didn’t tell me much of anything. I learned by reading that small nerve fiber can affect your autonomic nervous system meaning you heart, your blood pressure, you stomach and intestines. That is something important to know. I also read that you can have an autoimmune disease and not know it. I like this site because people share things. Something that you might say could help someone else. I have noticed a big change in healthcare that is disturbing to me. Doctors are seeing more patients and have less time for you. I don’t know if anyone else has experienced it but when I asked my ladies group they told me their stories. One thing I think is important is to be prepared with questions. Keep it short and sweet but let them know your concerns. I have a fantastic cardiologist who I bring my questions to. She answers.

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Thank you