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Has anybody ever heard of anything like this?
I’m kind of new to Neuropathy. Anyways, about three months ago I hurt my back at the gym, went to my doctor. He told me to take a muscle relaxer. I went home took one 15 minutes later I was pins and needles head to toe. Ended up in emergency room. It’s been hell ever since. At night when I fall asleep, I can feel strange sensation going down my sciatic nerve on my left side when it gets to the bottom of my foot, it moves over to the other side and goes down the right side. Every night it takes a little bit more away from me makes my feet really sore and hard to walk on. Takes about three hours for me for my feet to feel normal then it just repeats the cycle one night I was laying in bed and pulled on my knees and thought I pinched a nerve in my back, when I did this that sensation stopped for two days, but I had like resonance felt like it was coming from my lower back, but it would not leave there from that spot which feels like my spine L5 . my legs felt great for two days and they felt like they were healing. I slept for two days every night solid my wife couldn’t believe it. I couldn’t believe it. Nothing was going down my legs and my feet were starting to heal. I had no nerve damage before this. I never had diabetes. My blood pressure is perfect. No underlying health conditions after two days I was laying in bed and I could feel a tingling in my hip and I could feel that things slowly going down my left leg took about an hour for it to get there and then it felt a tingling on my right hip and then it’s slowly starting to go down my my right leg. And that awful feeling and damage in the morning was back. Everything that I read about this says the damage is caused to the nerves in your feet from blood vessels or something like diabetes, causing it or something. something screwed up with my peripheral nerves. It’s causing the thing that goes down my legs that I can’t control and it’s wrecking my legs. Went to my doctor and had an x-ray of my lumbar everything looks OK. Went to my chiropractor. He said I irritated the nerves. I must’ve stretched them, and that’s what caused what I thought was a pinched nerve the nerves in my glutes swelled up and hurt, it definitely blocked that thing that was going down my legs . my doctor thought I was crazy when you have this disease everybody thinks you’re crazy . It’s all in your head it’s not when I went to my Doctor Who thought I was crazy for a physical shortly after this, he gave me an EKG because I told him the night before my heart beat didn’t feel right now I have a fib from this disease do you believe me now he seems like he does. . I had an irregular heartbeat. It lasted about 12 hours and then it seems like it resolves itself. I got an appointment with the cardiologist soon. Hopefully I’m good .I was trying to get in at Mass General Hospital in Boston. I can’t get an appointment till February 7, 2024. i’ve been going to a Hospital in Worcester because I can’t wait. That’s a story in itself. I got hooked up with a neurologist he’s not helping me very much very much. I got this in a very unusual way I was poisoned by a muscle relaxer. The only time this thing gets me is when I fall asleep or about to fall asleep when I get really tired because I haven’t slept for three days because if I stay up it doesn’t come on unless I’m really tired something to do with the sleep mechanism that’s attached to this thing it sucks, I told this to my neurologist he looked at me like I had two heads. Has anybody ever heard anything like this? Hopefully I’ll still be able to walk by the time I get to that appointment in Boston.
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I agree with @rnlorena. It seems you should have an MRI, if you haven't already. The injury at the gym seems more relevant than the muscle relaxer.
I think it does. Most of my nursing career I worked as a hospice nurse. Part of that requires a lot of listening and understanding. That was the best part of nursing that I ever did. I can relate to people who are having a rough time because I have had rough times too. When you have a lot going on with your health and you are worried and unsure and can’t get answers it creates anxiety which can take its toll in addition to everything else. Reading peoples stories have given me different ideas about things. Someone once said to me don’t go down that rabbit hole. You do have to keep it in perspective when you read medical things. I firmly believe that reading has helped me to understand things that I didn’t know about my medical issues. I certainly think back when I was diagnosed with small nerve fiber with no known cause. The doctors didn’t tell me much of anything. I learned by reading that small nerve fiber can affect your autonomic nervous system meaning you heart, your blood pressure, you stomach and intestines. That is something important to know. I also read that you can have an autoimmune disease and not know it. I like this site because people share things. Something that you might say could help someone else. I have noticed a big change in healthcare that is disturbing to me. Doctors are seeing more patients and have less time for you. I don’t know if anyone else has experienced it but when I asked my ladies group they told me their stories. One thing I think is important is to be prepared with questions. Keep it short and sweet but let them know your concerns. I have a fantastic cardiologist who I bring my questions to. She answers.
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I took a muscle relaxer and 15 minutes later I had pins and needles from head to toe. I went to the emergency room they did a CT scan. They found a very small infraction on my basal ganglia. They ordered an MRI, which confirmed that .they treated me a stroke for four days they gave me every cardio test, they had a neurologist come in and look at the MRI. He told them that it was an old in fraction. and my symptoms were not caused by a stroke they said my vitamin B 12 was at the low range of the scale. I didn’t know anything about vitamin B12 you would think they would’ve gave me a shot of vitamin B 12 . That’s probably what caused this situation. I have no idea. knowing what I know now I can’t believe that nobody gave me vitamin B 12 I didn’t get any until I saw a neurologist a couple weeks later and he suggested that I go down to the grocery store and buy some vitamin B 12 and take it. So I’ve been taking 1000 MCG’s since then and I saw my primary care physician and I asked him about the vitamin B 12 and he’s like well. It was on the low ranger the scale it’s not like you didn’t have any in you. The thing is is that I eat so healthy I eat red meat I eat salmon, wild salmon, sardines pork, chicken , vegetables. had my B12 checked again and they said it’s around 500 which is normal . The healthcare system is broken and now I am too. by the way, I talk into giving me an MRI of my cervical spine, and my thoracic spine . I couldn’t get one of my lumbar, but my spinal cord is right in the middle of where it should be with nothing pressing on it I don’t know about the lumbar. I’ve had the neurologist and a spine surgeon, submit for lumbar MRI. Insurance company doesn’t want to pay for it because I think the Hospital spent so much money on the missed diagnosis but now the insurance company is giving me a hard time about unnecessary requests from the doctors ordering anything. What a nightmare.
Holy cow that’s what did me in Thanks for the info. I kind of thought. That’s what it was.
I had to really dig to find it. It’s almost like they hide that information.
I really had to dig to find that information almost like they hide it should’ve been the top of my list.
Meant to say it should’ve been at the top of the list