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Delaying treatment question

MAC & Bronchiectasis | Last Active: Oct 4, 2023 | Replies (38)

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@meadows

Thanks very much for telling me about what you have gone through. I had heard that the doctors sometimes do just two anti-biotics for some people. I have no symptoms, so I'm not sure what my dr. will say the next time I see him to get the broncoscopy results. I'm glad you have been helped! Thanks again.

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Replies to "Thanks very much for telling me about what you have gone through. I had heard that..."

I had no symptoms either, I still don't and I have a large cavity, I should say I had a large cavity because it's taking 6 months but my Mac has resolved as I mentioned above. But, if you can get on treatment. I recommend that. I also had a CT scan at the hospital, and of course when I had that done and they saw a mass like they saw on my CT which was actually an abscessed cavity, they thought it was cancer! Thank God it wasn't!! I do recommend that you start some form of treatment. Even if it's just 2 antibiotics; azithromycin and ethambutol. Like I mentioned before. If your doctor's taking the wait and watch approach I would find another doctor. I'll tell you why.. I had and have absolutely no symptoms but I had a cavity that was over 3" large on my upper right lobe. If I wouldn't have gotten pneumonia with it and started coughing a blood that night I would have never have had a reason to have a CT scan and wouldn't have known I had this so the cavity would have gotten bigger, not smaller.

If you do decide not to go through a treatment, make sure you are being watched like a hawk. Stay away from smoke, even barbecue smoke or smoke from bonfires.

The American lung association says that the only reason to do a wait and watch approach is to see if the disease doesn't progress at all. More than likely it is going to progress though. And you don't want it to do more damage.

Of course your treatment is up to you, whether you get it or not right now. But you don't want to have regrets either. I just wanted to add this to my previous post! Good luck!😀
Angela