← Return to New Here and need to learn fast

Discussion

New Here and need to learn fast

Lung Cancer | Last Active: Oct 31, 2023 | Replies (69)

Comment receiving replies
@sayitisntso

The best part of your reply was 23 years!!!! Congrats!

I’ve had tons of mucous for many years, throat clearing and burping but all drs. over the years have attributed it to the GERD/Silent Reflux or post nasal drip which I knew it wasn’t.

Of course over this week I’ve asked myself why I didn’t push the topic with a pulmonologist who may have further investigated vs an ENT or gastro who focused on the GERD. I even did a sleep study last year because I wondered if I had sleep apnea and if that could have been causing the coughing, that dr too said it was the GERD but again this has been years with the phlegm and coughing when I sleep so not sure whether related or not plus like I said in my first post.. it happens when I lie down, during sleep and first thing in the morning but does not affect me during the day although now that I think about it, i have noticed that it does after I eat too.

Thank you for your response.. 23 years gives me hope.

Jump to this post


Replies to "The best part of your reply was 23 years!!!! Congrats! I’ve had tons of mucous for..."

It sounds like you've had this problem for some time. This mucinous type of cancer used to be called Bronchial Alveolar Carcinoma back in 2000 but then the doctors later changed the name to Adenocarcinoma mucinous. If you've had this mucus problem for years, like me, you have to think it might be a slow growing lung cancer.

They won't know for sure if it is cancer until they get a tissue sample either by bronchoscopy or needle biopsy. Then they can look at the cells and if it is cancer they will be able to tell which type of lung cancer. If/when they plan to do a biopsy you want to make prior arrangements to have some genomic testing on the biopsy so they can determine which treatments will target the particular cancer type. My lung cancer (it returned 2 years ago) is called KRAS G12D which currently has no targeted therapy but they have begun testing. You can read about advanced testing here. The test cost about $2,000 but my insurance paid for it. https://www.webmd.com/cancer/what-is-genomic-testing