I was diagnosed at University of Virginia Cancer Center, then consulted Johns Hopkins Cancer Center, Memorial Sloan Kettering Cancer Center for treatment recommendations. Combined all opinions, I started with Lutathera therapy. Everyone is different. I would suggest at least one consultation from other NET experts.

Hello @snowflake0731 and welcome to the NETs support group on Mayo Connect. I am pleased to see that you are seeking support and encouragement as you begin this NETs journey.

I see that @jlu has already replied to you about her experience. She made an important point about seeing a NET specialist. As this is a rare type of cancer, a general oncologist may not have the specific training and experience in treating NETs. Getting a consultation with a NET specialist early-on in the diagnosis is invaluable. There are good NET specialists at all of the Mayo facilities (here is a link with appointment information http://mayocl.in/1mtmR63). If for any reason you are not able to consult at Mayo, here is a list of NET specialists (world-wide), https://www.carcinoid.org/for-patients/treatment/find-a-doctor/

If you care to share more, please share a bit about how your husband's diagnosis came about. Was he having symptoms that led to scans and a diagnosis? How is he feeling? Will you post again and share as you are able?