Good morning, I don't think any of us know enough at the beginning to seek out a specialist for lobular. It's through our journey we start digging and learning and finding out our doctors can't answer the lobular specific questions and in my case anyway, they rarely know what I've learned about it. For years the medical community has just lumped lobular in with ductal. I am so glad that you are tolerating let result, that should be a benefit. I am 5 and 1/2 years after bilateral mastectomy, no issues, feeling great, hiking climbing mountains. And the last couple months things have changed a bit and I want somebody who is up on the latest research, what types of imaging have they learned works better to see lobular? What new treatments are there? I've had enough experience with the surgeons and the oncologists I've met so far to know that they are really unaware of the details of lobular and the new research. It's not their fault, they're super busy with all of their patients, when do they have time for this. They are helping a lot of patients with ductal and that is great. As an example, both surgeons I went to wanted to give me a lumpectomy. A lumpectomy for lobular? There's no lump! I did my research and opted for the mastectomy, pathology afterwards showed another area of lobular no one knew about. If I followed their advice it would be growing inside of me without anyone knowing because it's not going to show up on a mammogram. Also, somebody here recommended a Facebook page about lobular, I joined it yesterday and so far I am more than impressed. My question was to find a lobular specialist in Florida and apparently I'm not the only one unable to find this. My personal search led me to MD Anderson in Houston, there is a highly knowledgeable researcher doctor named Jason Mouabbi, I will probably end up traveling to Texas to see him. I hope this is helpful and I wish you all the best on your journey.