I was dx with PMR in March 2023. I saw my internist and rheumatologist for the persistent pain. Before being dx, i had steroid shots in my shoulders with relief for only a few days. My hips were sore as well and was scheduled for a steroid hip injection. I saw the chiropractor regularly without relief of pain. They prescribed different doses of Prednisone and Prednisolene.
In May was hospitalized with double pneumonia. While in the hospital I was dx with MAI and bronchiectasis. I was referred to ID, pulmonary, cardiology, eye, hearing etc. i needed to start on the Big 3 drug treatment .
I have been on this treatment since June 2023 once I was cleared and had the baselines in place to start this regimen.
My problem is not the MAI treatment, it is the pain I am never out of from the PMR. I wish I only had it in the morning. It is quite debilitating . I had to stop working. My job was physical . I loved my job and hope to get back to it. I was very active worked and took care of my grandkids! This is very difficult to adjust too!
They suggested I stop the MAI treatment to treat the PMR pain. My pain was still present even before I started the MAI treatment. I have been on 50 mg of prednisolene with ridiculous pain. They cannot keep me on this high dose either.
I don’t want to stop the MAI treatment to have an additional setback. I go for the sputum check at the end of October.
This has been extremely tough but glad to have this site to follow up on the experience of others.
I look forward to having a day of being pain free.