Has anybody ever heard of anything like this?

Posted by sturner62 @sturner62, Sep 23, 2023

I’m kind of new to Neuropathy. Anyways, about three months ago I hurt my back at the gym, went to my doctor. He told me to take a muscle relaxer. I went home took one 15 minutes later I was pins and needles head to toe. Ended up in emergency room. It’s been hell ever since. At night when I fall asleep, I can feel strange sensation going down my sciatic nerve on my left side when it gets to the bottom of my foot, it moves over to the other side and goes down the right side. Every night it takes a little bit more away from me makes my feet really sore and hard to walk on. Takes about three hours for me for my feet to feel normal then it just repeats the cycle one night I was laying in bed and pulled on my knees and thought I pinched a nerve in my back, when I did this that sensation stopped for two days, but I had like resonance felt like it was coming from my lower back, but it would not leave there from that spot which feels like my spine L5 . my legs felt great for two days and they felt like they were healing. I slept for two days every night solid my wife couldn’t believe it. I couldn’t believe it. Nothing was going down my legs and my feet were starting to heal. I had no nerve damage before this. I never had diabetes. My blood pressure is perfect. No underlying health conditions after two days I was laying in bed and I could feel a tingling in my hip and I could feel that things slowly going down my left leg took about an hour for it to get there and then it felt a tingling on my right hip and then it’s slowly starting to go down my my right leg. And that awful feeling and damage in the morning was back. Everything that I read about this says the damage is caused to the nerves in your feet from blood vessels or something like diabetes, causing it or something. something screwed up with my peripheral nerves. It’s causing the thing that goes down my legs that I can’t control and it’s wrecking my legs. Went to my doctor and had an x-ray of my lumbar everything looks OK. Went to my chiropractor. He said I irritated the nerves. I must’ve stretched them, and that’s what caused what I thought was a pinched nerve the nerves in my glutes swelled up and hurt, it definitely blocked that thing that was going down my legs . my doctor thought I was crazy when you have this disease everybody thinks you’re crazy . It’s all in your head it’s not when I went to my Doctor Who thought I was crazy for a physical shortly after this, he gave me an EKG because I told him the night before my heart beat didn’t feel right now I have a fib from this disease do you believe me now he seems like he does. . I had an irregular heartbeat. It lasted about 12 hours and then it seems like it resolves itself. I got an appointment with the cardiologist soon. Hopefully I’m good .I was trying to get in at Mass General Hospital in Boston. I can’t get an appointment till February 7, 2024. i’ve been going to a Hospital in Worcester because I can’t wait. That’s a story in itself. I got hooked up with a neurologist he’s not helping me very much very much. I got this in a very unusual way I was poisoned by a muscle relaxer. The only time this thing gets me is when I fall asleep or about to fall asleep when I get really tired because I haven’t slept for three days because if I stay up it doesn’t come on unless I’m really tired something to do with the sleep mechanism that’s attached to this thing it sucks, I told this to my neurologist he looked at me like I had two heads. Has anybody ever heard anything like this? Hopefully I’ll still be able to walk by the time I get to that appointment in Boston.

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This is me just .. idk, dropping in..
Could some of these issues with supplements be associated with the dyes they use?(or fillers) There’s all sorts of stuff out there about the effects for kids.. but if an immune system is stressed, could that be a factor?
I’ve had B12 injections more than once in my life, for some reason the liquid was always fire engine red. Freaky.
Soon for the colloquialisms. But waiting in a parking lot & thought I’d see if everyone was ok..(it’s fall, nice colors..crappy for medical conditions)

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@seeker03

I can relate to many things on this thread. I have side effects to many drugs. I had sciatica off and on in my 50’s and 60’s. Now at 73? Seems like everything hit at once. I believe Covid brought everything out that was in my body: hereditary diabetes, hereditary Glaucoma, Hashimodo’s Disease and fibromyalgia along with the neuropathy and Long Covid. Many of these problems have similar issues so they overlap. Beta blockers in my eye drops were particularly bad for side effects. I had such a hard time with neurology and fibromyalgia pain at night I would cry and walk the floors. Gabapetin didn’t work. I started seeing an Osteopath who really helped me. He understands that my body is very sensitive to medication and supplements. I was prescribed methadone in very low dose which let me sleep at night. Then I was taken off that and prescribed Baclofen (muscle/nerve relaxer without side effects for me) in low dose which really helps me. Using stretch bands and 2 lb dumbbells for my shoulders and arms (fibromyalgia) and treadmill for my legs and feet and knees (both fibro and neuropathy) and stretching. It’s a slow process and I have my up and down days but I’m better. Hope you find a doctor who listens to you and works on a plan for your entire body like my Osteopath. Hang in there you will find what helps you!!

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Thanks

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@robindancer5678

I really appreciate you taking the time to tell your story. I too have been having reactions (severe itching all over my body, which makes me feel like I am being electrocuted) to over-the-counter vitamins, including iron, which I can no longer take, calcium, which, unfortunately I need for my bones, multivitamins, and the B vitamins are out of the question. This all started after I had Covid. It is very frustrating. I am meeting with an allergist this week to see what he has to say. Hopefully there is someway to get these things in me. Perhaps it is fillers in the vitamins. We’ll see.

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Yeah, everything seems like a crapshoot these days. I couldn’t imagine there are so many people out there that have these crazy neurological symptoms if I didn’t have them too I couldn’t believe it . Let me see I only went to the doctor every year for a physical for the last 25 years and that’s it. Now I have a neurologist, a cardiologist oh, and I have a spine surgeon that I saw. And I’m getting a second opinion from another neurologist in a few months. Oh, and a thyroid doctor too. Every time I turn around it is new. Good luck with the vitamins. PS. I thought I knew what suffering was, I didn’t have a clue.

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@sturner62

Yeah, everything seems like a crapshoot these days. I couldn’t imagine there are so many people out there that have these crazy neurological symptoms if I didn’t have them too I couldn’t believe it . Let me see I only went to the doctor every year for a physical for the last 25 years and that’s it. Now I have a neurologist, a cardiologist oh, and I have a spine surgeon that I saw. And I’m getting a second opinion from another neurologist in a few months. Oh, and a thyroid doctor too. Every time I turn around it is new. Good luck with the vitamins. PS. I thought I knew what suffering was, I didn’t have a clue.

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Yep, it all came at once but I’ve been so very lucky to enjoy good health until now. These diseases were in my body but in a suspended state until good old Covid. My diabetes and Glaucoma were both hereditary. The rest really came out of nowhere from Long Covid. I take thyroid pills and cream for the Hashimoto’s and use the CBD Salve, weights and stretch bands for fibromyalgia, when I have enough energy. Many on this list talk about Tai Chi which I’m thinking of trying if I can find a class. Good luck to you. The big thing is to try and stay positive. It’s very hard but that will see you thru when other things fail. I found that seeing one doctor, my Osteopath, was best for me. He’s both a traditional and holistic doctor who treats the whole body. Diet is very important. I had my fill of doctors with caregiving with my Mom and my husband had a liver transplant due to hep C acquired thru live virus inoculation. That was 16 years ago and he still has the liver. We did a lot of research and holistic care before the transplant. Positive attitude played a big role in his recovery as well. It was hard but very rewarding cause he’s still here with me doing great at 72.

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@rowun4

This is me just .. idk, dropping in..
Could some of these issues with supplements be associated with the dyes they use?(or fillers) There’s all sorts of stuff out there about the effects for kids.. but if an immune system is stressed, could that be a factor?
I’ve had B12 injections more than once in my life, for some reason the liquid was always fire engine red. Freaky.
Soon for the colloquialisms. But waiting in a parking lot & thought I’d see if everyone was ok..(it’s fall, nice colors..crappy for medical conditions)

Jump to this post

Yes many of the incidental substances in medicines can be reactionary. Preservatives especially. I’ve noticed they have some eye drops for Glaucoma with or without preservatives. Guess you kinda make yourself a guinea pig until you find the right combination of things that help you. This blog sure does help with the research.

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Is it possible that the muscle relaxer reacted with another drug you were on?

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I have learned from experience, and ALWAYS look up any new drug prescribed to me before I take it. This has actually saved my life. I have allergies to many, many drugs. Different drugs often interact with each other. The insert you get with your medication only gives you very superficial information. To get better information, you need to Google the name of the drug and monograph. If you do this, you will get all of the counter indications and adverse effects that are supposedly known. This way you can check to see if your new drug it’s related to a drug you are already allergic to, or if it is counter indicated for you for some reason, or if it interacts with another medication you are on. You can better assess the risk versus benefit of any particular drug by reading the monograph. Doctors don’t always check these things when prescribing a drug. To be fair they always don’t have time to do this. Also, rare interactions do occur and they won’t be listed anywhere, but in the monograph. If you’ve ever had a rare reaction, it’s especially important to check. Your pharmacist is also a good ally as their specialty is pharmacology. If I have a complicated question about a drug, I am more inclined to call my pharmacist, then my doctor. Usually the pharmacist has more time to talk to you and has a broader depth of information about particular drugs then say a GP would. Also, at least in Canada a consultation with the pharmacist is free.

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@tessie63

Is it possible that the muscle relaxer reacted with another drug you were on?

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That’s the only thing I took, I was on nothing else

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I was very surprised to read that you have pin pricks( it is also called paresthesia) from a muscle relaxer. Have you taken muscle relaxers for any period of time? I am not trying to throw a wrench here and I am not a Dr. but I have had pin pricks. I have an odd story. I woke up one morning and I had full onset everywhere of pinpricks including my eyes. I asked my neurologist how many of his patients had what I did and he said none it is rare. But here is my question do you know if you have stenosis in your back? Stenosis is a narrowing (an hour glass has a narrowing in the center of it) So I do know that with stenosis you can have pin pricks also. You also said you hurt your back at the gym. I looked up muscle relaxers and I couldn't find anything about pin pricks. Have you had an MRI with contrast because that would show things if you have it. I know you need answers. Believe me I know how it feels. I went to a neurologist and they did a bunch of tests-bloodwork, genetic testing and finally a skin biopsy. It showed I have small nerve fiber that is idiopathic meaning no known cause. It really is nerve racking when you need answers and I fully understand that. I have severe stenosis in my neck one area is both sides and one is one side in the disc. I have a brother who had (sciatica-which is pain) down both legs. He had a herniated disc. He had surgery for that. I certainly cannot diagnose you but seeing a neurologist should help you find out what is wrong. I also think an MRI with contrast should give them a picture of things. I do read things but I am interested in knowledge about my issues. I am a retired nurse so I do understand most medical words. Some I have to look up some because I never heard of it. I do know that as we age and I admit I just turned 68 okay that if you took a random set of people off the street and did MRI's on them you would find back degeneration. That is called aging. It is hard when you have to wait to see someone. Been there done that. Here is one thing that I like to do. Take a note pad and write down what happened to you. Don't write a book. Keep it short and sweet. Then write down your questions that you want to ask the Dr. I do that because if I don't I might get home and the one thing I really wanted to ask I forgot. Of course you need answers. The doctor will ask questions but I think some notes and questions would be good for you to write down. I wish you the best of luck when you see the Dr. and hope you find answers. I am still looking for some. I have an appt to see a neurosurgeon in November but I am trying not to get hopes up that he will be able to solve my issue. The most important thing is you are going to the Dr. to find out. Be prepared it really helps.

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